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does anyone experience this?

September 30th, 2006 · 1 Comment

Hi All,
I have gastroparesis (vagal nerve damage to stomach) as a result of getting
my gall bladder out. I also have sphincter of oddi dysfunction - my last
ERCP w/sphincterotomy (both biliary & pancreatic sphincters were cut) and
placement of a pancreatic stent left me with pancreatitis.
I’ve been having problems keeping food & water down, let alone pain pills
or antinasea pills. My stomach gi thinks it’s either the gp getting worse
or maybe it’s chronic pancreatitis (my pancreatic & liver enzymes are all
normal) - so I’m scheduled for a gastric emptying scan on the 8th to see
if it’s the stomach that’s been acting up.
GP is one form of neuropathy (it’s autonomic), and I have peripheral neuropathy
in my right leg (which started about a year or two after the gp).
Since the pancreatitis, I’ve had trouble urinating - meaning I can’t go all
the way - it’s like I can’t empty my bladder completely, so I go all the time -
at least 3 times a nite I wake up to go.

I wound up at the ER on Fri - w/severe upper abdominal pain - they said it’s
not pancreatitis since my levels were normal (yet I know they don’t have
to be “off” to have pancreatitis - and my stomach gi dr agrees). They said it
was the SOD, gave me IV painkillers and sent me home. I told them about
the urination problem, and they said I should mention it to my stomach gi.
I searched on the internet to see if underactive bladder can be related to
neuropathy - and it appears it can. I’m worried that the neuropathies I already
have are just going to get worse and that I’m going to wind up with more of them
affecting more organs/body parts. What can I do to help prevent this from
happening?
Does anyone else have this bladder symptom? What do you do about it?
I’m drinking lots of water and lots of blueberry - juice, tea - to make
sure I’m flushing the urinary system as best I can, and I’m taking
Uva Ursi hoping that’ll help too.
Any advice/input would be greatly apprectiated.
Cathie in PA

Tags: health

1 response so far ↓

  • 1 allison_700 // Oct 1, 2006 at 2:22 am

    Cathie:
    I cannot comment on your issue but I can say that I spoke to my naturopath a
    few months ago about peripheral neuropathy a friend is suffering from. I asked
    her if she could offer results for this condition. She said yes.
    Now, granted she specializes in neurological disorders so she is trained in
    holistic medicine ESPECIALLY for neurology. She also has a laboratory
    background so she can understand lab results and more accurately interpret them
    than
    the doctors I have had. She definitely has a strong, strong background.
    But that being said, she is not a one of a kind. I am sure if you could look
    for someone who is an ND with those subspecialities you can find someone who
    can help you and give you answers, peace of mind and relief.
    If you cannot find someone and are willing to come to Atlanta for treatment
    (she has a number of out of town patients), I would be happy to give you her
    name and phone number.

    Good luck and stop accepting what the allopathic doctors are telling you.
    Instead solve your problem by looking elsewhere.
    Susan (Atlanta)

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